Sunday, June 16, 2013

Welcome to Autism

When Max was a baby his first Pediatrician was a guy named Dr Kothke.  He was okay, seemed well informed, mostly answered all my questions with "he seems okay to me"  On Max's 2 year visit I mentioned that Max layed on the floor on his chest with his legs crossed for like a considerable amount of time.  The Doctors  response was that maybe he was bored.  Bored really?  Thats your answer? 

We didn't really need to go back to the doctor between that visit and having Sam.  We had Sam and took him to a different Pediatrician and liked her fairly well, even after she told us Sam has a genetic disease we still liked her.  I decided to switch Max to her as well.

So at this point Max is 3 years old, his speech is a little behind but not too bad but he is still doing his leg crossing.  I make a special Apt with our Ped and ask her what is up.  She talks to Max, makes sure he makes eye contact, knows his colors and says he is fine.  Okay

At this point I am so busy shuttling Sam around creation to his appointments i'm not sure I would have noticed if Max grew a second head.  Well the leg crossing continues off and on and at some point Max add rocking to this repitore of things he does.

Max starts preschool, in October his teachers want to know what on earth my kid is doing on the floor.  I tell them he is leg crossing "floor humping" and I don't know why he does it but the pediatrician isn't very concerned.  Max starts to rock in his chair also and the teachers keep grilling me on what is going on with him. 

After a 20 min phone call to the Pediatrician I am assured Max is fine he since his academics are very good the strange movements are steroetipic behaviors and he should out grow them.  Okay.

His preschool teachers are still concerned so I video tape his episodes and show them to Sam's occupational therapist, 2 therapists actually.  One didn't really know what he was doing and the other thought he was just centering himself.

At this point no one knows what is going on and I am tired of asking.  Jeremy and I even tried taking him off of wheat in case he had an allergy or something and still he floor humped and rocked.

A couple of monthes ago one of Sam's teachers from early on came over to the house for a home visit.  Max starts doing his leg crossing and she says "what is he doing"  I tell her no one knows but more and more I feel like we should be more concerned about Max then Sam I just can't get anyone to listen to me.  She says we should talk to an occupational therepist becuase he seems to have some sort of sensory issues.

So I call the pediatrician again.  I tell her again about Max's behaviors and she again falls back on how good he is in school.  I tell her I just want a script for OT and she wants to know what for.  Sensory stuff I guess I say.  She thinks if we are really still concerned we should see some one named Dr.Bowers.  Fine lets do that.

So our appointment was last Monday.  Before we get there we had to fill out like an 8 page form about our kid.  There were all sorts of questions about how his delivery was to how old he was when he first held a spoon to when he was potty trained.  The more I filled out the more I wondered if maybe we did have a problem.  I mean know that you ask, yes max majorly freaks out when a train goes by.  He hates to have his hair cut, he prefers is waffles to be frozen, he hasn't shown a hand preference and he was a late talker.  Or maybe we are over reacting and he is just weird. 

I show up with video of said behaviors in hand.  I meet a very nice man named Dr.Bowers who talks about all his strange behaviors and some other things and basically tells us he is on the spectrum.   The Autism spectrum.

He tells me that as we are sitting here talking Max pretty much ignores us and that the toys he chooses are all linear based toys.  Trains are a very linear toy no imagination involved.  So my kid doesn't have an imagination, super.  He goes on to say that his teachers probably loved him because he is a cute little kid that doesn't make to much noise and can say the alphabet. 

So from here we have OT and Speech therepy to begin soon.  We will also have some therepy when he is in school.  He isn't supposed to ride the bus since that is a time when he rocks the most and I am to make sure he is engaged and not off in la la land, or going down the rabbit hole, as Dr. Bowers put it.   We are also going to try something called the play project, which I hope will help him with the imagination portion of the problem.

So the next couple days I was pissed off.  I was pissed that it took this long to get a diagnosis and I was pissed that I know have 2 special needs kids.  I mean really 2 kids with IEP's  really?  I am fairly certain I don't have the patience for this.  How do we dicipline him know if he rocks when he is im time out?  How do we deal with his melt downs know that we know he has a problem?

There is a quote I love  that goes "failure to plan on your part doesn't constitute an emergency on my part"  I feel like I am living this right now.  I feel like I have all this stuff I have to do before he goes to school that we could have been doing years ago had anyone listened to me in the beginning.  Its summer we are supposed to be playing not doing behavoiral check lists. 

I stopped whining yesterday though.  Yeah I am still frustrated as heck.  I so wish we had found out sooner but I cant change that.  I find my self dealing with this much as I delt with Sam's diagnosis.  I had to have CHARGE free days.  Today I had an Autism free day.  That means I didn't read anything about it, talk about it, or do any related paper work.  Well except for this post. 

I hope we get some info next week, this we know he has autism but are waiting on therapy is kind of weird.  Oh well.


63 comments:

  1. Great! Thanks for sharing the information. That is very helpful for increasing my knowledge in this field.
    pac man
    happy wheels
    my little pony games
    hulk games
    mickey mouse games
    car games
    bike games
    fun games

    ReplyDelete
  2. This is also a very good post which I really enjoyed reading. It is not everyday that I have the possibility to see something like this.
    juegosjuegos.com , friv 2 , kids games online , juegos de matar zombies , juegos de un show mas , jogos do friv , cities skylines mod , five nights at freddy's

    ReplyDelete
  3. I found a lot of information here to create this actually best for all newbie here. Thank you for this information.
    messenger indir | messenger indir | messenger indir | messenger indir | messenger indir | messenger indir

    ReplyDelete
  4. Thanks for this help. Hope so that this will help me in my next project. I like play game piano tiles | Piano Tiles | piano tiles 2 game | piano tiles | piano tiles 2 | Dream League Soccer | Score Hero | Score Hero game | Score Hero | Score Hero | Score Hero game | piano tiles 2 | piano tiles 2 game | so much. How about you? B612 | camera b612 | descargar b612 | b612 | b612 | descargar b612 gratis | camera b612 | Dream League Soccer | B612 lets you make collages with your pictures. You can make them with just a regular selfie or a composition of up to nine photographs, and even vertical compositions of two or three pictures.

    ReplyDelete
  5. I just want to say thanks for your wonderful post, it is contain a lot of knowledge and information that i needed right now. You really help me out my friend, thanks!
    juegos.com | juegos frozen|jogos pou

    ReplyDelete
  6. Thank you for your post, I look for such article along time, today i find it finally. this post give me lots of advise it is very useful for me
    happy wheels , agario , agar , fireboy watergirl , fireboy and watergirl , super smash flash 2 , happywheel

    ReplyDelete
  7. Just wanted to say that I read your blog quite frequently and I’m always amazed at some of the stuff people post here. But keep up the good work, it’s always interesting. See ya,
    agario|agar io|agar.io|agar|agario game|agario skins|agario extended|agario mods|agario|agar io

    ReplyDelete
  8. I wanted to thank you for this excellent read!! I definitely loved every little bit of it.Cheers for the info!!!! & This is the perfect blog for anyone who wants to know about this topic. I like Score Hero, camera b612, papas games, Piano Tiles 2. Papas Games is really something, none of the series are cliché and all of them are very much enjoyable.

    ReplyDelete
  9. Thanks for your sharing. We feel very happy about that. You should also try my best to play our FREE today to get the sense of fun that brings. Thank you!
    return man 3
    return man 2
    return man

    ReplyDelete
  10. Nicely written information in this post, the quality of content is fine and picture very nice. Things are very open and intensely clear explanation of issues.
    play run 3 | big head soccer | mahjong online |

    ReplyDelete
  11. kawan-kawan semuanya yang keren-keren, ada yang mungkin bisa anda lihat di blog yang sudah saya buat. sekarang ini saya sudah membuat blog yang berisi tentang ionformasi top tentang berbagai peristiwa yang ada terima kasih atas semua kontent yang bermanfaat dan sukses selalu untuk anda. jika anda ingin sebuah informasi tentang update terbaru terpopuler tentang info sosial media, situs terpopuler, dan toko online maupun gadget hp dan lain lain. lihat daftar daftar daftar Hp kamera terbaik terpopuler dan terpopuler dengan banyak fitur dan canggih , dan lihat juga daftar hp canggih harga hp advan terbaru terbaru dan bagus untuk anda lihat lagi info yang tak kalah keren yaitu aplikasi edit foto android Hp kamera terbaik dan info tentang banyak hp android tebaru 2016 ada di harga hp advan terbaru dan lain sebagainya. termasuk link yanga bisa anda lihat tentang hp advan yang keren abis dan mungkin anda kan membutuhkan info yang terpenting ini harga hp advan terbaru terakhir adalahaplikasi keren dan yang di buru oleh banyak orang aplikasi edit foto android dan akhirnya terima kasih dan selamat menjalankan sesuatu

    ReplyDelete
  12. I was working and suddenly I visits your site frequently and recommended it to me to read also. The writing style is superior and the content is relevant. Thanks for the insight you provide the readers!
    Signature:
    Download retrica online includes more than eighty different filters with many different styles and include retrica indir , and zombie tsunami is the ideal game for anyone who loves the running game genre

    ReplyDelete
  13. It's perfect for those students, who want to study about this faculty. I like the news that you have written in a detail. I like play games ninja games online, free games, Douchebag Workout 2, papa games. How about you?
    Stick RPG

    ReplyDelete
  14. Earn to Die is the latest installment of the Earn to Die series. Here the game quickly picks off from where it left off and sees the main character escaping the zombies and reaching the military base.

    Earn to Die 2 | Earn to Die 3

    Tank Trouble Game is one of the most exciting online flash games, it revolves around shooting of opponent tanks and finishing them for points.

    Tank trouble 2 | Tank trouble 3 | Tank trouble 4

    ReplyDelete
  15. The breakfast club Full Movie | Pulp Fiction Full Movie | Shawshank redemption Full Movie
    Tammy Full Movie This is such a great resource that you are providing and you give it away for free. Racing Games I love seeing websites that understand the value of providing a quality resource for free. It?s the old what goes around comes around routine.
    Anne of Green Gables Full Movie | Son of a Gun Full Movie | The Book of Life Full Movie |G I Joe Retaliation Full Movie | Think Like a Man Too Full Movie

    ReplyDelete

  16. This is also a very good post which I really enjoyed reading. Please visit our website and play exciting games:
    slither.io | slitherio | wings.io | wingsio | Science Kombat | Science Kombat Game
    Play the fabolous earn to die game and complete all the levels.You can play all the seven parts of the game on our website :
    Tank trouble | Tank trouble 2 | Tank trouble 3 | Tank trouble 4

    ReplyDelete
  17. Hotmail is an email account of Microsoft Corporation. Like Google's Gmail, it is full of features usually xuyen.Neu of an email you want to register an account please follow these basic steps:
    Hotmail login

    Hotmail review

    Sign in to hotmail

    Log in to hotmail

    Recover hotmail password

    Tank Trouble is a very interesting flash game about tanks, about war and about destruction
    TANK TROUBLE | TANK TROUBLE 2

    One Penguin Takes it personally when he is surfing the web and stumbles upon a web site telling him that he cant fly, after that he sets his mind to research and practice flying until he can prove the world that he can..
    Slitherio | LEARN TO FLY | LEARN TO FLY 2

    Strike Force Heroes is a new game action-packed shooter from the creators of Raze; with 3 game modes, 15 campaign missions and over 65 weapons.
    Strike Force Heroes | Strike Force Heroes 4

    ReplyDelete
  18. I can't say a lot in regards to this thought, yet it's really intriguing exchange surely.
    C Homework Help

    ReplyDelete
  19. The war between humans, orcs and elves continues. Lead your race through a series of epic battles, using your crossbow to fend off foes and sending out units to destroy castles. Researching and upgrading wisely will be crucial to your success!
    slitherio | unfair mario 2 | age of war 2
    The game controls are shown just under . Movement mechanisms primarily include acceleration and tilting controls.
    cubefield | tank trouble | happy wheels |age of war 3 |
    age of war 2 | duck life

    ReplyDelete
  20. Online gaming is a hobby of many people. Game Run Unblockedversions as Run 3 Unblocked or Run 4 Unblocked is a very interesting game to control the bear run or jump to the safe landing area falls. risks with such racing game Car Racing Games or interesting as the game Donkey Kong Unblocked or Car Racing Games wrap pulled a lot of players. Good luck!

    ReplyDelete
  21. I found your entry interesting do I've added a Trackback to it on my weblog
    This website is awesome. I constantly come across something new & different right here. Thank you for that data.
    Return Man|Douchebag workout 3|download b612|Douchebag Workout 2|Return Man|don't tap the white tile|Douchebag Workout|Photo Grid|b612 app|Douchebag Workoutpiano tiles 4|Return Man 2|Photo Grid Free|b 612|unblocked games|Return Man 2|Douchebag Workout

    ReplyDelete
  22. I have been searching out for this similar kind of post for past a week and hardly came across this. score hero game Thank you very much and will look for more postings from you. I like play diep.io online, Mutilate A Doll 2 game, return man 2 free online game, play free games online and Douchebag workout and StickRPG2

    ReplyDelete
  23. Busy life circumstances than the current world history. Must try to earn money to support themselves, their families and pay for living. But not so that you neglect your own health, but more must cherish it.
    geometry dash, geometry dash game , geometry dash , geometry dash 2.0 , geometry dash 2.0

    ReplyDelete
  24. I used to play games after long day of work tired or bored. And I would recommend to everyone a very interesting game and attractive for both color and sound
    run 2 , run 2 game , run 2 unblocked , run 2 , run 2

    ReplyDelete
  25. The article gives me a lot of interesting information. I still often share life experiences with friends. And I enjoyed the convenience and attractiveness of free messaging app
    whatsapp baixar , baixar whatsapp , whatsapp baixar , baixar whatsapp gratis

    ReplyDelete
  26. Facebook has become a part of my life, not only helped me to connect with you but also where I can share every moment in life. I really like the convenience that it brings
    facebook baixar , baixar facebook , facebook baixar , baixar facebook , facebook baixar , baixar facebook gratis


    ReplyDelete
  27. How often do you play games on free time or after hours of work stress? I usually come to the game as a way to balance life is full of pressure. And I would recommend to everyone that I loved the game
    strike force heroes 2, strike force heroes 2 game, strike force heroes 3 , strike force heroes 2 game

    ReplyDelete
  28. This is one of the cult game now, a lot of people enjoy playing them . Also you can refer to the game :
    gold mine strike | pokemon go 2
    The game controls are shown just under . Movement mechanisms primarily include acceleration and tilting controls.
    stickman games | stick war 2 | animal jam 2

    ReplyDelete
  29. Thanks for sharing the information. It is very useful for my future. keep sharing. Can you play more games at :

    Cookie Clicker
    Cookie Clicker play
    Cookie Clicker game
    Cookie Clicker online

    ReplyDelete
  30. The blog or and best that is extremely useful to keep I can share the ideas. Age Of War 2
    Big Farm | Slitherio | Tank Trouble
    Of the future as this is really what I was looking for, I am very comfortable and pleased to come here. Thank you very much.
    Happy Wheels | Goodgeme Empire | Slither.io

    ReplyDelete
  31. You need to have time to take care of the active. It in fact was a amusement account it. Look advanced to far added agreeable from you.
    banana kong ,
    banana kong baixar ,
    baixar banana kong ,
    download banana kong

    ReplyDelete
  32. Life becomes more interesting and wonderful when you share your memorable moments with friends and family through unique photographs. You can create your own unique style impressed with image editing software. And after hours of work stress you can also

    tank trouble, tank trouble 2, tank trouble games, tank trouble

    ReplyDelete
  33. Mostly people have all the same things when they are writing academic task or any other writing, especially light music most people like during the writing.
    dream league soccer download , dream league soccer apk , dream league soccer , dream league soccer apk

    ReplyDelete
  34. Thanks I have read your article, it is very interesting and exciting
    download go launcher, go launcher apk, go launcher , go launcher androi,

    ReplyDelete
  35. Mostly people have all the same things when they are writing academic task or any other writing, especially light music most people like during the writing.

    subway surf , baixar subway surf, subway surf download , download subway surf

    ReplyDelete
  36. Life becomes more interesting and wonderful when you share your memorable moments with friends and family through unique photographs. You can create your own unique style impressed with image editing software. And after hours of work stress you can also
    dr driving, dr driving baixar ,download dr driving, dr driving

    ReplyDelete
  37. This is one of the cult game now, a lot of people enjoy playing them . Also you can refer to the game :
    gold mine strike | pokemon go 2
    The game controls are shown just under . Movement mechanisms primarily include acceleration and tilting controls.
    stickman games | stick war 2 | animal jam 2

    ReplyDelete
  38. I like your all post. You have done really good work. Thank you for the information you provide, it helped me a lot. I hope to have many more entries or so from you.
    lucky patcher l download lucky patcher l lucky patcher app l lucky patcher download l lucky patcher apk

    ReplyDelete
  39. Very interesting blog. Alot of blogs I see these days don't really provide anything that I'm interested in, but I'm most definately interested in this one.
    wings.io l wingsio l wings io l wingsio game l play wingsio

    ReplyDelete
  40. I think there are many people like and visit it regularly, including me.I actually appreciate your own position and I will be sure to come back here.
    baixar sonic dash l download sonic dash l sonic dash baixar l sonic dash game l sonic dash download

    ReplyDelete
  41. To be able to participate in free online games. You can click here to play always.
    gun mayhem | can your pet
    learn to fly | happy wheels
    tank trouble 3

    ReplyDelete
  42. I was working and suddenly I visits your site frequently and recommended it to me to read also. The writing style is superior and the content is relevant. Thanks for the insight you provide the readers!
    Signature:
    juegos friv
    العاب طبخ بنات
    لعبة طبخ الباسطا بالدجاج
    لعبة طبخ البان كيك مع الاميرة
    العاب باربي
    العاب طبخ بيتزا
    العاب طبخ جديدة ...

    ReplyDelete
  43. Thanks for sharing your post. Thanks to this I can understand more about the role of education. This article is easy to understand and useful. Do you like Sushi Cat 2, fancy pants 3, baixar mobogenie, Happy Wheels 4?

    ReplyDelete
  44. Do not hope for a relationship is clearly not the most advanced weapon to protect my heart from damage. Since you can not know where, sometimes an ambiguous relationship even more painful goodbye.
    facebook entrar , entrar no facebook , entrar facebook , entrar facebook direto , entrar facebook agora

    ReplyDelete
  45. It is a great article. You will surely like this also because it is a great stufff
    Facebook Lite

    ReplyDelete