10. I am thankful for our van. I feel like I waited quite a while before deciding our Subaru was too small and we got our Mini Van and we love it.
11. I am thankful Max loves school.
12. I am thankful we have enough to eat.
13. I am thankful for our church.
14. I am thankful for our dog
15. I am thankful for the Facebook/Pintrest because some days that's all the socializing I get.
16. I am thankful that Sam has a good team of Doctors that if they don't know the answer will refer us to some one who does.
17. I am thankful for all my friends. Sometimes my family doesn't know what to say or how to say it in reference too all that has gone on with Sam. But my friends, my good old ones, seems to handle all this in stride and for that I am thankful.
18. I am thankful for Jeremy's parents
19. I am thankful we live in America where we are free to worship who and how we choose, we can vote and do all sorts of other things you can't do in other countries.
Monday, November 19, 2012
Friday, November 9, 2012
Thankful 6-9
Second installment of things I am thankful for but first:
Every one has funny ways of saying things, or little expression they use every day. We don't even know that we do it until we have kids. I say things like, the tv is acting funny, or the computer is acting funny as a way to say it isn't working I guess. I didn't realize this until Max started saying it, only he says it differently. He says "My socks are being funny" I'm thinking so are they telling jokes now or what? Turns out he just put them on upside down.
6. I am thankful for Grandpa Bruce my dad. He was always a good dad but he goes above and beyond for his grandchildren. He loves them and sees them at least once a week, comes to soccer games, has been very supportive of our special Sammy, and is just a very important part of our lives.
7. I am thankful that even though Obama won the election I can take comfort in the fact the God is the one in control and even though I am honestly fearful of what Obama will do to our country I have to believe that this is God's plan.
8. Sam's health: Sam has a rare genetic disease, it kills 20% of the children that have his mutation. When we learned what Sam had we saw all these very serious complications online that are very common with this, heart defects, stomach not attached to your esophagus, needing a trach to breath to name a few. Some how by the grace of God Sam missed out on the major scary stuff and for that I am thankful.
9. I am thankful that the cop I blew by today on my way home was looking down when I drove by doing 45 in a 25.
Every one has funny ways of saying things, or little expression they use every day. We don't even know that we do it until we have kids. I say things like, the tv is acting funny, or the computer is acting funny as a way to say it isn't working I guess. I didn't realize this until Max started saying it, only he says it differently. He says "My socks are being funny" I'm thinking so are they telling jokes now or what? Turns out he just put them on upside down.
6. I am thankful for Grandpa Bruce my dad. He was always a good dad but he goes above and beyond for his grandchildren. He loves them and sees them at least once a week, comes to soccer games, has been very supportive of our special Sammy, and is just a very important part of our lives.
7. I am thankful that even though Obama won the election I can take comfort in the fact the God is the one in control and even though I am honestly fearful of what Obama will do to our country I have to believe that this is God's plan.
8. Sam's health: Sam has a rare genetic disease, it kills 20% of the children that have his mutation. When we learned what Sam had we saw all these very serious complications online that are very common with this, heart defects, stomach not attached to your esophagus, needing a trach to breath to name a few. Some how by the grace of God Sam missed out on the major scary stuff and for that I am thankful.
9. I am thankful that the cop I blew by today on my way home was looking down when I drove by doing 45 in a 25.
Tuesday, November 6, 2012
Things I am thankful for
Several of my Facebook friends are posting one thing a day that they are thankful for in leui on Thanksgiving. I think this is cool, kind of a open prayer also. I also wish to participate but I feel like this is a more appropriate place for me to put the things I am thankful for. Sometimes I am a bit un comfortable talking about things that are going on in our lives that are good if the same thing is not going well in your life. My blog to me is somehow more private even though anyone can read it. It's weird I know but I feel like if you are here than you want to be, with Facebook you read everyone's news feed weather you cared to or not. So with out further delay in no particular order
1. The Jerf - Jerf gets up with the kids when I can't, loves on the kids, plays with the kids, does stuff around the house goes to work and is generally a good egg. Yes he will probably read this :)
2. Mr.Max - Our first born son is a very cool little boy who enjoys preschool and driving his brother crazy.
3.Sir Sam - My second child also very cool, also loves to drive his brother crazy. I enjoy his goofy little personality and his nibble your ears off cuteness every day.
4.Our House - We have a nice house that fits us all well, in a nice neighborhood, warm in the winter cool in the summer.
5. Jerf's job - My husband has a good job, lets us stay in above mentioned house.
6. The right to vote - Women haven't always had this privilege, we should excersice it on election day!
Traditionally you post one a day but I started late.
1. The Jerf - Jerf gets up with the kids when I can't, loves on the kids, plays with the kids, does stuff around the house goes to work and is generally a good egg. Yes he will probably read this :)
2. Mr.Max - Our first born son is a very cool little boy who enjoys preschool and driving his brother crazy.
3.Sir Sam - My second child also very cool, also loves to drive his brother crazy. I enjoy his goofy little personality and his nibble your ears off cuteness every day.
4.Our House - We have a nice house that fits us all well, in a nice neighborhood, warm in the winter cool in the summer.
5. Jerf's job - My husband has a good job, lets us stay in above mentioned house.
6. The right to vote - Women haven't always had this privilege, we should excersice it on election day!
Traditionally you post one a day but I started late.
Sunday, November 4, 2012
What is that mother thinking?
I have been having some clothing issues with Max lately. He wants to wear sandals and its November or he doesn't think pants are necessary. In his defense it was warm here just recently but its not any more. Any way Max puts up a huge fight about wearing sandals and I realize this kid has got to learn to trust me when I say its cold out, so I did what any tired parent would do. Let him wear his sandals to school,lets see how he likes having cold feet. So we get in the car to drive to preschool and I begin to think, what are his teachers going to think when he shows up with sandals on today? Probably that his mother is a class A moron for letting her kid go to school with sandals on when we had a frost this morning. So we pulled into the school parking lot and I happen to have an extra pair of shoes in the car, slip them on his feet and away to school he goes.
This gets me to thinking though....I had no idea how much random kid stuff I am responsible for. If its yellow day at school, I am responsible for 1. knowing that its yellow day and 2. finding Max a yellow something to take to school. Its not his fault, he can't yet read a calender so I can't even blame him for not knowing that it's yellow day. I'm responsible for knowing how warm/cold its going to be and making sure he has the right jacket/shoes/mittens/hat/winter coat. Not that its a big deal I just didn't realize all that was involved in having a kid in preschool.
This gets me to thinking though....I had no idea how much random kid stuff I am responsible for. If its yellow day at school, I am responsible for 1. knowing that its yellow day and 2. finding Max a yellow something to take to school. Its not his fault, he can't yet read a calender so I can't even blame him for not knowing that it's yellow day. I'm responsible for knowing how warm/cold its going to be and making sure he has the right jacket/shoes/mittens/hat/winter coat. Not that its a big deal I just didn't realize all that was involved in having a kid in preschool.
Tuesday, October 23, 2012
Hearing Aids the Naked Truth
So my son Sammy has bi-lateral hearing loss. Mild to moderate in his right and mild in his left. This means that he needs to wear hearing aids as much as he and I can tolerate. So when Sam was 8 months old he was fitted for hearing aids. They take an impression of your ears and cast a mold from that and sent it to you in the mail. The cool part is you get to choose what color your mold will be so we went with red and green for Christmas.
As you can imagine getting an 8 month old to wear a hearing aid is about impossible. He tore those things out and threw them all most the second they hit his ears. If he didn't throw them right away he would suck on them, and then they would short out and die. So our first hearing aid only lasted a month.
We got our second set of hearing aids in March when he was about a year old. After learning he is deaf blind and the duel sensory lose is a major thing and he needs all the input possible so we got the left and right ear aided this time. We went with red white and blue molds.
He also had a fancy test called an ABR which is a sedated hearing test that measures how well the brain is getting sound. This is important because a 1 year old isn't always great at telling you what he can and cannot hear.
That set of hearing aids was by far my favorite. They fit his ears really well, and we wore them all the time, then he out grew them. We went for Green and White that time and ironically lost one of them on the campus of MSU. We lost the other aid 2 days later. Rather impressive since we had never lost an aid till then. The good news is his aids are covered for 1 year and we had them from just under one year so we got new ones in the mail.
About this time an organization called Hands and Voices contacted us. To this day I'm not sure what their purpose is but they came to the house and chatted with us for a bit and gave me a binder on hearing loss. Funny thing is for us, hearing loss is just a stepping stone if you will. For many parents hearing loss is the worst diagnosis they will have to deal with and I feel like they didn't know what to do with us since its only a small portion of our issue.
So now we have Yellow, Red and Black aids for Mickey Mouse. The right ear doesn't fit into his ear canal very well and he gags when I try and get it in and for some reason he doesn't like to only wear one aid. So we are waiting for tomorrow, he has another hearing test and hopefully he either does so well we can pitch the aids or Lori can help me fit the new aid into his funky ear canal or make us a new mold.
As you can imagine getting an 8 month old to wear a hearing aid is about impossible. He tore those things out and threw them all most the second they hit his ears. If he didn't throw them right away he would suck on them, and then they would short out and die. So our first hearing aid only lasted a month.
We got our second set of hearing aids in March when he was about a year old. After learning he is deaf blind and the duel sensory lose is a major thing and he needs all the input possible so we got the left and right ear aided this time. We went with red white and blue molds.
He also had a fancy test called an ABR which is a sedated hearing test that measures how well the brain is getting sound. This is important because a 1 year old isn't always great at telling you what he can and cannot hear.
That set of hearing aids was by far my favorite. They fit his ears really well, and we wore them all the time, then he out grew them. We went for Green and White that time and ironically lost one of them on the campus of MSU. We lost the other aid 2 days later. Rather impressive since we had never lost an aid till then. The good news is his aids are covered for 1 year and we had them from just under one year so we got new ones in the mail.
About this time an organization called Hands and Voices contacted us. To this day I'm not sure what their purpose is but they came to the house and chatted with us for a bit and gave me a binder on hearing loss. Funny thing is for us, hearing loss is just a stepping stone if you will. For many parents hearing loss is the worst diagnosis they will have to deal with and I feel like they didn't know what to do with us since its only a small portion of our issue.
So now we have Yellow, Red and Black aids for Mickey Mouse. The right ear doesn't fit into his ear canal very well and he gags when I try and get it in and for some reason he doesn't like to only wear one aid. So we are waiting for tomorrow, he has another hearing test and hopefully he either does so well we can pitch the aids or Lori can help me fit the new aid into his funky ear canal or make us a new mold.
Friday, July 20, 2012
Don't ask unless you really want to know
So their is this Thai restaurant here in town. Jeremy and I both really like it. We have been there so many times we know the people that work there. They are always very nice when we go in, ask how my kids are and I ask about hers.
Well the other day I decided we should have Thai for dinner since we hadn't been in a while. I go in and Kim was sitting there with her nephew and she says "wow you look great, whats you secret to lossing the baby weight are you on a diet or is it stress?" I stood there for a sec and thought about my answer. What do I tell her? Do I lie and say nothing special. Do I say breastfeeding which is at least partailly true? Or do I tell the truth and say my son was born with a rare genetic disease that you have never heard of before and every time we can home from a specialist with a new list of what was "wrong" with him I didn't feel like eating for the next day or so.
Its kind of like when you are late to something and someone says something like "did you get into a car wreck or what" Well sometimes the answer to that question is yes. So in the end I told her that I breast feed for a while and that Sam was a little sick as a newborn so some of my weight loss was due to stress but now he is doing better. She said, "oh so you breastfed", a little uncomfortably, and then changed the subject.
I felt kinda of bad about the conversation. She wasn't in any way trying to be mean or rude, and I didn't want to lie to her but I did kinda feel like the whole story was way to much information. I guess the lesson here is don't ask unless you really want to know.
Well the other day I decided we should have Thai for dinner since we hadn't been in a while. I go in and Kim was sitting there with her nephew and she says "wow you look great, whats you secret to lossing the baby weight are you on a diet or is it stress?" I stood there for a sec and thought about my answer. What do I tell her? Do I lie and say nothing special. Do I say breastfeeding which is at least partailly true? Or do I tell the truth and say my son was born with a rare genetic disease that you have never heard of before and every time we can home from a specialist with a new list of what was "wrong" with him I didn't feel like eating for the next day or so.
Its kind of like when you are late to something and someone says something like "did you get into a car wreck or what" Well sometimes the answer to that question is yes. So in the end I told her that I breast feed for a while and that Sam was a little sick as a newborn so some of my weight loss was due to stress but now he is doing better. She said, "oh so you breastfed", a little uncomfortably, and then changed the subject.
I felt kinda of bad about the conversation. She wasn't in any way trying to be mean or rude, and I didn't want to lie to her but I did kinda feel like the whole story was way to much information. I guess the lesson here is don't ask unless you really want to know.
Wednesday, July 18, 2012
Sense of Direction
I have a really bad sense of direction. Even on routes I have taken many times before I can get lost. I have trouble with North, South, East, and West. Don't even get me started on Left vs Right. I don't know why this is really. A friend of mine asked my dad if I came into the world backwards and my dad said "well actually she was breach." Well at least I get it honestly.
I bring this up because my son Max has an excellent sense of direction. He knows the second I take a different way home, he yells from the back seat "going the wrong way!" Then I have to explain to him why I went the way I went.
We were at St Joe's a while back for some apt and we left the hospital a little differently than we had entered. I was looking around the parking lot for our car and Max pipes up and says "the car is over in there mom" Oh yeah, so it is.
My favorite happened just recently. The family had gone to the Hands On Museum and Jeremy lead us around the block the wrong way to get inside. On the way out he said we should go the other way, and we did and i looked at jeremy and we both quietly said I wonder if Max will notice. Sure enough "your going the wrong way mom and dad" He so did not get that from me.
I bring this up because my son Max has an excellent sense of direction. He knows the second I take a different way home, he yells from the back seat "going the wrong way!" Then I have to explain to him why I went the way I went.
We were at St Joe's a while back for some apt and we left the hospital a little differently than we had entered. I was looking around the parking lot for our car and Max pipes up and says "the car is over in there mom" Oh yeah, so it is.
My favorite happened just recently. The family had gone to the Hands On Museum and Jeremy lead us around the block the wrong way to get inside. On the way out he said we should go the other way, and we did and i looked at jeremy and we both quietly said I wonder if Max will notice. Sure enough "your going the wrong way mom and dad" He so did not get that from me.
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